The Results Are In ~ 3/28/22

Ugh! I was given my CT scan results with a comparison to 2017, 2019, and 2021 scans. I don’t understand how things disappeared. Cysts yes, they can come and go but hernias and deteriorated discs that are crumbling? Those don’t heal themselves. Do they?

I was left with one concern which requires a referral to a vascular surgeon. With a very clear reinforcement that this isn’t urgent. It does NOT automatically mean I need surgery only that a consultation is in order for further diagnosis.

This condition supposedly left behind is called Pelvic Congestion Syndrome (PCS). Past scans have shown this before but I was told PCS doesn’t cause the pain I’m describing. Plus PCS is a younger lady’s ailment. Also, it’s rare even if those under 40. I’m not that unique. The description of who gets this doesn’t truly fit me.

The final difference is that PCS gets worse when standing and better to lie down. Mine is the opposite. Standing stretches me out to release the heavy feeling. When I lie down, I feel somewhat better than I do sitting but no real relief. Constant pain I tell ya! C.O.N.S.T.A.N.T !!!!!

I’ll play this game, I’ll see your $1 and raise you $2. I’m going to the consult. See what this new doctor tells me. I hope my dilated vein doesn’t rupture before I can get in. Too close to what happened to my brother-in-law D. Oy Vey.

I also need to find a new PCP and begin again. No looking at past records for jaded opinions. Like I have amnesia, I can’t remember. Let the games begin all over again.

As always, more to come.

P.S. the real kicker is when I called to schedule the consultation, they found me in the system from 2005-ish. They had my landline which is how I could determine the time frame. We moved here in January of 2000. Changed the phone number to the one they had. Didn’t cancel that landline until we’d been here about 4-5 years. I have zero recollection of getting a vascular consult before now. She was unable to provide more details for me to sleuth around & figure out what happened. Guess I flaked out completely. Oh well, better late than never.

Ta-ta for now πŸ™‚

30 thoughts on “The Results Are In ~ 3/28/22

  1. I have watched my niece go through this for years. It is so unsettling trying to maneuver through our health care systems. I truly hope you can get someone qualified to help you resolve the issues and control the pain. Holding good thoughts for you, Jill.

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    1. Thanks Maggie! I wish I could recall the 2005 visit. I always marked this starting in 2010 but now to know I had symptoms even earlier. Very strange.

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      1. That’s just what I told Peter. We have to be our own healthcare advocates. I just need to do a better job of not playing worst case scenario.

        Liked by 1 person

    1. I agree, self diagnosis is rarely correct (obviously I’ve had zero training) but I have also found being your own healthcare advocate is becoming a necessity. So I read and compare and wig out. Then rinse and repeat. lol

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  2. Jill, I feel your pain. Our medical system is so messed up. Did your primary give any indication of what type of specialist might help with your specific symptoms? I hope you get some answers and better still, some solutions.

    Liked by 1 person

    1. I think she just punted me to someone else. She was rushed and basically repeated what was on the email coming from the patient portal. My own online research which is a big no-no tells me I don’t have what they think I have. Nothing in the research matches my symptoms except the area of the body the pain comes from. Lower left quadrant is 1/4 my body with lots of possibilities. I just wonder how the hernia and degenerative discs went away? A miracle, I’m cured. lol

      Liked by 1 person

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