Ugh! I was given my CT scan results with a comparison to 2017, 2019, and 2021 scans. I don’t understand how things disappeared. Cysts yes, they can come and go but hernias and deteriorated discs that are crumbling? Those don’t heal themselves. Do they?
I was left with one concern which requires a referral to a vascular surgeon. With a very clear reinforcement that this isn’t urgent. It does NOT automatically mean I need surgery only that a consultation is in order for further diagnosis.
This condition supposedly left behind is called Pelvic Congestion Syndrome (PCS). Past scans have shown this before but I was told PCS doesn’t cause the pain I’m describing. Plus PCS is a younger lady’s ailment. Also, it’s rare even if those under 40. I’m not that unique. The description of who gets this doesn’t truly fit me.
The final difference is that PCS gets worse when standing and better to lie down. Mine is the opposite. Standing stretches me out to release the heavy feeling. When I lie down, I feel somewhat better than I do sitting but no real relief. Constant pain I tell ya! C.O.N.S.T.A.N.T !!!!!
I’ll play this game, I’ll see your $1 and raise you $2. I’m going to the consult. See what this new doctor tells me. I hope my dilated vein doesn’t rupture before I can get in. Too close to what happened to my brother-in-law D. Oy Vey.
I also need to find a new PCP and begin again. No looking at past records for jaded opinions. Like I have amnesia, I can’t remember. Let the games begin all over again.
As always, more to come.
P.S. the real kicker is when I called to schedule the consultation, they found me in the system from 2005-ish. They had my landline which is how I could determine the time frame. We moved here in January of 2000. Changed the phone number to the one they had. Didn’t cancel that landline until we’d been here about 4-5 years. I have zero recollection of getting a vascular consult before now. She was unable to provide more details for me to sleuth around & figure out what happened. Guess I flaked out completely. Oh well, better late than never.
Ta-ta for now 🙂
Getting a diagnosis is the hard part. Once you’ve crossed that bridge, getting treated is easy. All the best Jill.
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Yes I agree. I just need a correct diagnosis. I tell myself that if this was terminal, I’d be long gone considering when symptoms first appeared.
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Exactly! If an illness is not changing your life in a major way, it’s not serious.
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Sorry this is so frustrating 😦
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It is and it makes me think I have lost my mind which is quite possible. lol
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I am in the same boat of starting over with doctors. Good Luck
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sorry that’s what it’s come to for you too. this is a mess
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Don’t give up trying to get someone to listen. I’m sorry you are going through this.
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Thanks SadiRose. I feel like I should just go away but I won’t. I’m nothing is not persistent.
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I hope someone is able to help you get to the bottom of this.
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Someone will eventually. Lulu says she wants to book me on to Mystery Diagnosis, become a TV star. Too bad that show was cancelled. lol
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Discover Magazine usually has a difficult to diagnose article each month.
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I should look that up. I find this stuff interesting. The human body is quite amazing.
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I have watched my niece go through this for years. It is so unsettling trying to maneuver through our health care systems. I truly hope you can get someone qualified to help you resolve the issues and control the pain. Holding good thoughts for you, Jill.
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Thanks Maggie! I wish I could recall the 2005 visit. I always marked this starting in 2010 but now to know I had symptoms even earlier. Very strange.
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It is becoming more and more obvious we must all manage our own care.
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That’s just what I told Peter. We have to be our own healthcare advocates. I just need to do a better job of not playing worst case scenario.
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Yes, there is that.
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I think we were all better off before we could look everything up! It was much better when the doctor said things like “You have a worn hip/knee/ disc/elbow. Only to be expected at your age!
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I agree, self diagnosis is rarely correct (obviously I’ve had zero training) but I have also found being your own healthcare advocate is becoming a necessity. So I read and compare and wig out. Then rinse and repeat. lol
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It’s all so disturbing and confusing Jilly I hope you get some relief really soon 💜💜💜
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Thanks Willow
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A pleasure 💜
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Jill, I feel your pain. Our medical system is so messed up. Did your primary give any indication of what type of specialist might help with your specific symptoms? I hope you get some answers and better still, some solutions.
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I think she just punted me to someone else. She was rushed and basically repeated what was on the email coming from the patient portal. My own online research which is a big no-no tells me I don’t have what they think I have. Nothing in the research matches my symptoms except the area of the body the pain comes from. Lower left quadrant is 1/4 my body with lots of possibilities. I just wonder how the hernia and degenerative discs went away? A miracle, I’m cured. lol
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I’ve certainly never heard of those going away.
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I hope you will eventually find out what is wrong. Best wishes, Jill.
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Thanks John!
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