My journey in this fresh hell began 11/11/17 when I fell and broke my arm.
Today I had my follow-up from all the lab work previously completed. No secondary causes for my osteoporosis. All blood work and the 24 hour collection urine analysis was in normal range.
I answered the additional questions and my FRAX is 3 for hip and 9 for everything else. If you recall over 3 and over 20 were definitely treat. I am on the bubble going from 2.3 to 3 on hip but down from 9.4 to 9 on all else. I was all yay! Repeat scan in a year. Thanks for playing. Have a great day!
But, oh no. Missy Thing the PA said I had a fragile fracture in her opinion when I broke my left arm. She said I was definite candidate for treatment and she jumped directly to option 3. I said cool your jets Missy Thing, we’d have to make the case for insurance because we’d be skipping Option 1 and 2. She said her case is made because of my numbers.
What the what??!?! last I checked 3 was not greater than 3 and 9 is definitely not more than 20. I asked her who was right? Her or the doctor? She said she’d go find him and run her assessment by him. And yes I was mean to her. Nice mean. Blunt not mean. Oh what the hell I am out of sorts.
The appointment ended with me saying I needed to consider all my options. I will not be rushed into a decision. I left with orders for a repeat scan in January 2019 and appointment to follow three days after.
If I change my mind, I call and tell them. At which point I will inject myself daily for 24 months for one and done treatment to grow new bone. My head is spinning and I cannot even do the math. Come on brainy types. That is how many shots?
Oh and by the way, Missy Thing tells me somewhere in our discussion that this medicine gave lab mice cancer BUT they injected them with triple doses. She said I should not worry. The mice are not white females over 50 who have had fragile fractures. They’d never give me a triple dose. Ugh! How ridiculous. Talk to the hand Missy Thing.
As always, more to come.
Talk to the Hand Alright!
~ When In Doubt ~ Leave it Out ~
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Exactly! The box warning on the drug is off the chain. Not only no but hell no!
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They checked vit d and PTH right? I really hope so as those are the leading causes of treatable osteoporosis. And hope they checked phosphorus.
I was diagnosed at 30 and went to the mayo clinic at 45 because my numbers were -3/3 and the mayo clinic endocrine doctor said no studies were done that she felt were good enough that would risk putting someone my age on treatment for osteoporosis. Not until 60. So just wanted to share the Mayo Clinic suggestions to me. And they still don’t know why. So frustrating. I feel for you
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They’ve check vit d and I’ve brought those numbers but to normal levels. I’ll look through the lab report for phosphorus. They tested for everything else with 8 vials of blood. Thank you for sharing. It helps me be an informed consumer of my own health.
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PTH is parathyroid hormone and it is directly linked to osteoporosis and they better have done that one!!!!! Now I will be curious if you run across it let me know
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Bingo PTH reference range 10.0-65.0 and my value is 50.1. No idea what it means but appears within the range.
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Dang. Ok . Well pth normal and vit d normal. Those and phosphorus are the ones I know that cause osteoporosis. How very very odd. But they still dont know what caused mine. I am really hoping you get answers
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Thank you 🙏
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At least they arent being total idiots
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Good for you for taking control and telling Missy Thing to cool her jets! They keep trying to put me on meds for blood pressure (which I will admit is higher when I am in the doctor’s office but I have white coat syndrome and it is lower when I take it at home) and cholesterol, which is normal. Because I have diabetes I am “at risk.” For right now I’ll accept the risk. Having repeat tests in a while sounds reasonable. Good luck!
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Thanks Janet. I’m sort of second guessing myself today. But I’m an over thinker. Trying to put it out of my mind for a while.
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Best wishes to you so you can get this all behind you.
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Thanks Tony!
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